Patience

I am here about to eat dinner with roomates.  It was a futile day, in which I got next to nothing done. The winds blew slow and cold; my mind was a swirliing pool of disorieentation. Everything stood still for too long.

I found myself wrestling with another blogsite for hours; because I’m using a tablet, several complications arose and I was unable to create a blog. And things were bursting out of my skin, wanting to be on the page.

This last chemo treatment left me feeling 20 years older, disoriented and in a bleak mood. Rashes burst out on my skin and they used some kind of steroid to address the problem.

I only have two treatments left, however it is highly likely that I am in for another round of 12 treatments, assuming the chemo continues to be effective. The 17 tumors in my liver have responded slowly but most assuredly to the germ warfare imposed  upon them. My doctor was glowing with hope  and proomise upon the last cat  scan, just two weeks ago.

Radical submission to God’s willl for my life means that the outcome of all this is none of my business. It means that the relationships in my family outside of myself are also none  of my concern. What you think of me is also not within my realm of interest. What is most challenging is a sort of detahment- the desire to fix broken relationships, the earnest longing to heal the pain in others;  aall  these things are outside the scope of my concern. This is what I wrestle wit: this need to make things right between others. Another word for this is ‘meddling’.

My path is narrow and full of light. May that I seek only to bestow the good I am asked to share, not the good I would impose. May that I not cause confusion, tho my intentions be right. May that my days be full of laughter, love, and kindness.

Patience is the distance a single ray of light travels across the universe to reach our eyes. It is focused, narrow, determined. Unwavering, it seeks not to infuence the path of others.

May I be that ray of light.

Wisps of Clouds

In front of me: a very large electrolyte-charged bottle of water and a turkey sandwich from Trader Joe’s. I spent most of the afternoon receiving chenmotherapy in Scarborough at the Doc’s office and now have bag full of the stuff to be pumped into me for the next 48 hours.

The dishwasher is full and the last thing i want to do is deal with it, but, as they say, God is in the details. God is in me and in front of me, God is the thing I least want to do. Ha- I have no idea; these are just the loose thoughts that float through my chemo brain like wisps of clouds.

I was empty long before I ever got into drugs or learned of this cancer; I recall isolating a great deal as a child. On a sailboat my father rented for the day I would hide and sleep below decks. The shadowy warmth of simply being alone; there was great comfort in spending time with my only companions- depression and my fantasies.

The laughter of my peers as a child felt like a stab to my chest; I couldn’t understand how they could know anything like happiness. There were entire dimensions that seperated me from the child sitting next to me in math class.

Suicidal mindsets followed into adulthood like an echo. There were a scarce few scattered romantic relationships, but for the most part it was me and my bed and my self pity.

The happiest I remember being was when I had a career in radio- I spent much time writing for the station: imaging statements and such. It was an easy listening station. I think they still use one of my imaging statements: “Easy 99.1…. putting the soothe in smooth.”

It was cocaine and enraptured frenzied writing. I found something finally, or something found me. Entranced, I would bury myself in the desk in front of me, writing intro poems for the romantic air time which followed my shift. Cocaine locked me in and gave me a vitality I never had. It gave me a promise of something biggger than myself. It gave me the hope for love.

I remember one night, blood in the bathroom of the radio station, my eyes darting at the video cameras to see if anyone was around the station, my heart a drumbeat of fear- I remember falling to my knees and praying for the first time I can remember.

“God, please help me.” I knew I was licked but it would be some time before I would ask for help. It would be some time before something else would begin to fullfill cocaine’s empty promise.

Winds of the Tornado

I saw my social worker today and we worked on the concept of letting things go that don’t neccesarily concern me. Most of my life I have seen myself as the eye of the tornado, the center of a chaotic force, tearing up the landscape of those around me. The intentions of this metaphorical tornado can be good, but the end result is always destruction and confusion. I want people to act the way I think they should act; I want people to be present for me even though I make little effort to reach out to them.

It involves a sibling who has more or less been estranged from the family for some 20 years. The tornado wants to stir things up so that the winds blow, uproot her life, and have it fall back to earth in such a manner that it arranged in the way I want it to be. I realize that my desire to have my sister back in my life is more about me than it is about her happiness:  The tornado arranges blows apart the lives of others and rearanges the disparate parts to suit the tornado. I am the eye of the storm.

I want her to be there for me to suit my wishes, without regard to whatever issues she may have. I want peace in my family, at the expense of my family.

The tornado is the ego, blowing things apart, lifting them up into the air, and bringing them back onto new ground, everything in a different place that suits the eye of the storm which sees things from only one unblinking eye. It takes nothing into account but its own wishes to arrange the people things around it to suit its comfort level.

Sometimes the winds of the tornado are quiet as a whisper, manipulating the enviroonment to rearrange itself. But the eye is always clear and unblinking, virtually unable to see things from the point of view of the ground beneath it. There is on tenderness to eye, no awareness beyond its wishes.

I wish the winds would quiet and I would fall to the earth in simple harmony with all that is.

Lynch Syndrome and Brotherly Love

I asked God today in my morning meditation to place the word tolerance in the center of  my heart, and that I use no other words. I am by my nature fairly intolerant. That shortcoming came to the fore during my last employment experience. It was working with people who have serious mentall health issues– schizophrenia, etc. These men had goals everyday and when they failed to meet them, I found myself judging them.

No matter how ardently I would bring these shortcomings to my prayer life, I remained locked in self. How very dissapointed I became in myself! Now… I find myself in a similar position as my former clients- my goals every day are that small. I am being tought humility with a hammer. One of my goals, through my social worker, is to wake up at nine every morning. I have not been perfect with that goal, but there is progress.
I was diagnosed with stagefour rectal cancer shortly after a burnout leave of absence from work. I had experienced a mysterious fatigue and pain in my liver area for a brief period before I saw my doctor but thought nothing of it. I am 38, after all.
I have since learned that I have ‘lynch syndrome,’ a genetic dissorder that caused this cancer. In addition, it appears that my dear brother has it as well, as doctors found three pre-cancerous polyps upon colonoscopy shortly after I was diagnosed. He is still waiting genetic testing results. This shatters my heart.
My brother David and have become extremely close since all this happened. He calls me every day and gives me strength without trying or saying anything partiicularly special. He is in me and I am in him. And he is well and I suppose that must be why I feel stronger after speaking with him.
Chemotherapy causes emotional instability, a whole lot of crying. At one point, I didn’t want my brother to hear me in that kind of distress. I reallized it was pride that held me back from being fully transparent with him in that way so I made it a point to call him when the chemo had me crying. He recieved my call with grace and understanding. That’s love.

Sleepwalking

I woke up strong and early today. All my life I’ve felt like I’ve been sleepwalking, ungrateful for the love of my family and friends. Then drugs came into the picture and I found a solution to the fact that I can’t do life. I never could. I was created by perfect love with a deeply flawed character.

It’s ironic that overcoming addictiongave me the foundation to face this diagnosis: stage four rectal cancer. I rely on Christ for direction, guidance, and comfort. I do not, however, go to church. I believe in an intimate relationship with the creator. Tooday In prayer I forgave cancer for trying to kill me and in Christ’s name asked that it be cast out.

I am currently meeting a friend for coffee as I write. It goes back to an intuitive thought I recieved immediately upon diagnosis. This thought said, “Spend as much time as you possibly cannnwith other people.” Of course, at the time I had no idea what the import of that thought was. I do now.

There are countless instances of wherein nausea and the wide array of symptoms related chemotherapy and cancer are treated by the simple act of genuine human interaction. I recall one instance in which I was to speak at an a.a. meeting very eary one morning following a night of intense nausea, vommiiting, etc.A few friiends showed up very early to take me to the meeting- I was on the verge of cancelling. The meetiing was quite sone distance away, and my symptos vanished in the midst of intense, authentic sharing.

This phenomenon cannot be explained medically, only through the sunlight of the holy spirit.